This took a lot of courage for me to write this. My goal is to help someone who’s experienced this as well and to let them know that they are not alone.
Since I was in middle school (2009- 2011), I’ve been struggling with my health. I had no idea what was going on with me. I always had fevers, nosebleeds, back pain, a weak bladder, and headaches but no answers. I remember one day in school, I was sitting and my back just locked up. I couldn’t move, I was trying so hard not to cry. It was happening so often. It was to the point where it just became normal.
Until 2018, it started getting worse, the headaches got stronger, the fevers got higher, stomach got weaker and a new one that summer, my right eye was paralyzed I couldn’t move it (it eventually went back to normal). I spent that whole summer going to so many doctors looking for answers, but all they could say was I have acid reflux and my iron is extremely low.
Ok now 2020, not to mention this is my senior year of college…. I lost feeling in my legs, After I got my wisdom teeth out in June, it came back early July.
Then we get to September, everything went downhill from here. Every week I woke up with something new. It started with painful headaches, then shooting pain in the back of my right eye, then lost vision in my right eye, then had chills, lost feeling in my feet, then it eventually went from my toes all the way to my thighs. My toes turned blue. The left side of my face started drooping and became numb. Kept getting covered in burning, itchy rashes. I had neck and back pain. It was so hard for me to fall asleep. I got paler and paler. Felt very light headed.
I looked in the mirror and couldn’t help but to cry. It didn’t look like me anymore. I felt lifeless and didn’t know what was happening to me. After seeing doctor to doctor all my life, finally someone who knew something and told me I need to go to the ER ASAP. My boyfriend took me. The ER thought I was having a stroke and they were performing so much on me. I didn’t know what was going on.
I finally got answers at 11:30pm October 3rd. I went through so much alone and couldn’t have anyone in the room with me because of Covid. One nurse stayed with me the whole time while I was getting my lumbar puncture (a huge needle in your spine to get fluid that surrounds your brain and spinal cord). I’ll forever remember every staff that talked to me. I’ll cherish that forever. I was seriously having mental breakdowns everyday. My anxiety gets worse. After 4 days in the hospital. I was diagnosed with Multiple Sclerosis (MS). I have many lesions in my brain, neck and spine.
I was on steroids IV and oral for 3 weeks. My body slowly reverted back. But the littlest stress and even doing everyday things triggers another flare up.
Finally begin treatment next month. So excited for 2021 to finally start feeling normal.